First Do No Harm: Suggestions Regarding Respectful Autism Language

doi:10.1542/peds.2020-049437N

. 2022 Apr 1;149(Suppl 4):e2020049437N.

doi: 10.1542/peds.2020-049437N.

First Do No Harm: Suggestions Regarding Respectful Autism Language

Patrick Dwyer^{1

2}, Jacalyn G Ryan³, Zachary J Williams^{4

5

6

7}, Dena L Gassner^{8

9}

Affiliations

¹ Center for Mind and Brain.
² Department of Psychology, University of California Davis, Davis, California.
³ Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada.
⁴ Medical Scientist Training Program, Vanderbilt University School of Medicine, Nashville, Tennessee.
⁵ Department of Hearing and Speech Sciences, Vanderbilt University Medical Center, Nashville, Tennessee.
⁶ Vanderbilt Brain Institute.
⁷ Frist Center for Autism and Innovation, Vanderbilt University, Nashville, Tennessee.
⁸ School of Social Work, Adelphi University, Garden City, New York.
⁹ Department of Health Sciences, Towson University, Towson, Maryland.

PMID: 35363298
PMCID: PMC9066426
DOI: 10.1542/peds.2020-049437N

First Do No Harm: Suggestions Regarding Respectful Autism Language

Patrick Dwyer et al. Pediatrics. 2022.

. 2022 Apr 1;149(Suppl 4):e2020049437N.

doi: 10.1542/peds.2020-049437N.

Authors

Patrick Dwyer^{1

2}, Jacalyn G Ryan³, Zachary J Williams^{4

5

6

7}, Dena L Gassner^{8

9}

Affiliations

¹ Center for Mind and Brain.
² Department of Psychology, University of California Davis, Davis, California.
³ Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada.
⁴ Medical Scientist Training Program, Vanderbilt University School of Medicine, Nashville, Tennessee.
⁵ Department of Hearing and Speech Sciences, Vanderbilt University Medical Center, Nashville, Tennessee.
⁶ Vanderbilt Brain Institute.
⁷ Frist Center for Autism and Innovation, Vanderbilt University, Nashville, Tennessee.
⁸ School of Social Work, Adelphi University, Garden City, New York.
⁹ Department of Health Sciences, Towson University, Towson, Maryland.

PMID: 35363298
PMCID: PMC9066426
DOI: 10.1542/peds.2020-049437N

No abstract available

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Conflict of interest statement

CONFLICT OF INTEREST DISCLOSURES: All authors of this commentary receive financial compensation from serving on the Autistic Researcher Review Board of the Autism Intervention Research Network on Physical Health (AIR-P). Mr Williams also serves as a consultant for Roche and a member of the family advisory committee of the Autism Speaks Autism Treatment Network Vanderbilt site.

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References

1. Cage E, Di Monaco J, Newell V. Experiences of autism acceptance and mental health in autistic adults. J Autism Dev Disord. 2018;48(2):473–484 - PMC - PubMed
1. Bury SM, Jellett R, Spoor JR, Hedley D. “It defines who I am” or “it’s something I have”: what language do [autistic] Australian adults [on the autism spectrum] prefer? [published online ahead of print February 28, 2020]. J Autism Dev Disord. doi:10.1007/s10803020044253 - DOI - PubMed
1. Kenny L, Hattersley C, Molins B, Buckley C, Povey C, Pellicano E. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism. 2016; 20(4):442–462 - PubMed
1. Sinclair J Why I dislike “person first” language. Auton Crit J Interdiscip Autism Stud. 2013;1(2): 2–3
1. Milton DEM. On the ontological status of autism: the “double empathy” problem. Disabil Soc. 2012;27(6): 883–887

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[1] Cage E, Di Monaco J, Newell V. Experiences of autism acceptance and mental health in autistic adults. J Autism Dev Disord. 2018;48(2):473–484 - PMC - PubMed

[2] Cage E, Di Monaco J, Newell V. Experiences of autism acceptance and mental health in autistic adults. J Autism Dev Disord. 2018;48(2):473–484 - PMC - PubMed

[3] Bury SM, Jellett R, Spoor JR, Hedley D. “It defines who I am” or “it’s something I have”: what language do [autistic] Australian adults [on the autism spectrum] prefer? [published online ahead of print February 28, 2020]. J Autism Dev Disord. doi:10.1007/s10803020044253 - DOI - PubMed

[4] Bury SM, Jellett R, Spoor JR, Hedley D. “It defines who I am” or “it’s something I have”: what language do [autistic] Australian adults [on the autism spectrum] prefer? [published online ahead of print February 28, 2020]. J Autism Dev Disord. doi:10.1007/s10803020044253 - DOI - PubMed

[5] Kenny L, Hattersley C, Molins B, Buckley C, Povey C, Pellicano E. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism. 2016; 20(4):442–462 - PubMed

[6] Kenny L, Hattersley C, Molins B, Buckley C, Povey C, Pellicano E. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism. 2016; 20(4):442–462 - PubMed

[7] Sinclair J Why I dislike “person first” language. Auton Crit J Interdiscip Autism Stud. 2013;1(2): 2–3

[8] Sinclair J Why I dislike “person first” language. Auton Crit J Interdiscip Autism Stud. 2013;1(2): 2–3

[9] Milton DEM. On the ontological status of autism: the “double empathy” problem. Disabil Soc. 2012;27(6): 883–887

[10] Milton DEM. On the ontological status of autism: the “double empathy” problem. Disabil Soc. 2012;27(6): 883–887

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First Do No Harm: Suggestions Regarding Respectful Autism Language

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First Do No Harm: Suggestions Regarding Respectful Autism Language

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