Continued Medical
Education Opportunities
IRSF is fully committed to supporting healthcare providers. The following educational resources are available to clinicians to ensure access to relevant, timely, and accurate information about Rett syndrome.
Rett Syndrome CME Opportunities
Browse our comprehensive list of Rett-related continuing medical education resources offered by accredited organizations. These educational programs are designed to enhance clinical understanding, provide insights into the latest research advancements, and promote best practices in the diagnosis, treatment, and management of Rett syndrome. Check back here regularly for new CME courses and opportunities.
Increasing Clinical Suspicion of Rett Syndrome: A Review of Key Concepts for Pediatric CliniciansMedscape
Valid until May 17, 2025
Medscape
Valid until May 17, 2025Course Description
The goal of this activity is for learners to be better able to identify symptoms in patients that may be indicative of Rett syndrome, increase their ability to utilize appropriate clinical tools and referrals to improve the timely diagnosis of Rett syndrome, and improve their knowledge of best practices in the management of Rett syndrome.
Upon completion of this activity, participants will have increased knowledge regarding the:
– Symptoms associated with Rett syndrome
– Medical specialties involved in the multidisciplinary care team for the management of Rett syndrome
– Clinical data for new and emerging therapies being studied for the management of Rett syndrome
ADDITIONAL INFO
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Rett Syndrome: From Pathophysiology to Modern Research and Novel Therapies
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until May 21, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until May 21, 2025Course Description
Learn about the current landscape of diagnosis and treatment for patients with Rett syndrome, including origins, common presentations, multidisciplinary management, and new and emerging therapies for this neurodevelopmental disorder.
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
What Is Rett Syndrome? (Part 1)
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until June 10, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until June 10, 2025Course Description
Part 1 of this 4-part CME/CE-certified Medical Minute series provides an introduction to Rett syndrome, including genetic etiology, typical and atypical presentations, developmental timelines, and symptomatic impact on multiple organ systems. This overview from a specialist in complex care pediatrics supplies background information valuable for any members of a clinical support team providing care to patients with Rett syndrome.
Upon completion of this activity, participants should be able to:
– Identify disease course milestones and diagnostic criteria of Rett syndrome
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Leveraging the Interdisciplinary Team for Holistic Treatment of Rett Syndrome (Part 2)
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until June 10, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until June 10, 2025Course Description
Part 2 of this 4-part CME/CE/CPE-certified Medical Minute series provides an overview of strategies for the interdisciplinary care of patients with Rett syndrome. This guide from a specialist in complex care pediatrics provides tips for integrating partners from multiple specialties into a comprehensive care team to manage individualized symptom needs.
Upon completion of this activity, participants should be able to:
– Formulate effective strategies to integrate members of the interdisciplinary care team in the treatment of patients with Rett syndrome
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Pharmacologic Treatments for Rett Syndrome (Part 3)
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until June 10, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until June 10, 2025Course Description
Part 3 of this 4-part CME/CE/CPE-certified Medical Minute series provides background and clinical trial data for a newly approved pharmacologic treatment for patients with Rett syndrome and introduces other therapies currently under investigation. View this concise summary from an expert pediatric neurologist to learn about available treatment options for your patients.
Upon completion of this activity, participants should be able to:
– Formulate effective strategies to integrate members of the interdisciplinary care team in the treatment of patients with Rett syndrome
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Caregiver Perspective on the Current State of Rett Syndrome Care (Part 4)
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until June 10, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until June 10, 2025Course Description
Part 4 of this 4-part CME/CE/CPE-certified Medical Minute series provides the perspective of a caregiver to a patient with Rett syndrome on her experiences navigating complex medical care and providing daily care for her daughter. View this personal story to understand the journey through the course of diagnosis and treatment and learn about valuable resources available to pass on to your patient caregivers.
Upon completion of this activity, participants should be able to:
– Devise strategies for improving the caregiver burden in Rett syndrome
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Exploring the Evolving Role of the Neurologist Within the New Care Paradigm in Rett Syndrome (Part 1)
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing BarriersMedlive Neuro
Valid until July 25, 2025
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing Barriers
Medlive Neuro
Valid until July 25, 2025Course Description
Newer therapies are now available for the treatment of Rett syndrome, but questions remain about how to integrate them into care, particularly in community-based settings. Join an expert panel – featuring a neurologist from an International Rett Syndrome Foundation (IRSF)-designated Rett syndrome center of excellence, a community-based neurologist, and a patient advocate from IRSF who will elucidate the central role of the neurologist in the care of patients with Rett syndrome. The panel will describe how to recognize and diagnose Rett syndrome and explore the latest findings on newly available treatment options and their place in team-based care. Case-based discussions will highlight strategies to overcome challenges faced by community-based clinicians and provide guidance for neurologists initiating treatment and working with the greater care team to monitor and manage adverse events, as well as when and how to refer patients to centers of excellence. This activity is the first in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.
ADDITIONAL INFO
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Rett Syndrome Foundation (IRSF).
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.
Teaming Up to Treat Rett Syndrome: The Importance of Fostering a Multidisciplinary Approach to Patient Care - Center of Excellence Session (Part 2 - Northeast/Tristate)
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing BarriersMedlive Neuro
Valid until July 25, 2025
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing Barriers
Medlive Neuro
Valid until July 25, 2025Course Description
With newer therapies now available for the treatment of Rett syndrome, it is essential that the challenges of managing patients with rare diseases, such as Rett syndrome in resource-poor areas or “care deserts” be addressed.
Join a neurologist and a gastroenterologist from Boston Children’s Hospital, an International Rett Syndrome Foundation (IRSF)-designated center of excellence, as well as a local neurologist “champion,” who will provide an overview of newly available therapies for the treatment of Rett syndrome and explore the increased importance of neurologist-gastroenterologist collaboration for adverse event monitoring and management. These experts will also review the need for lifelong, multidisciplinary team-based care for Rett syndrome patients, and share practical strategies to improve care access for patients who may not have geographic access. Case-based discussions will explore the unique unmet care needs in community-based settings in the region and offer targeted solutions to building a multidisciplinary care team in the community and effectively leveraging new treatment options in the clinic. This activity is the second in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.
ADDITIONAL INFO
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Rett Syndrome Foundation (IRSF).
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.
Teaming Up to Treat Rett Syndrome: The Importance of Fostering a Multidisciplinary Approach to Patient Care - Center of Excellence Session (Part 2 - Southeast)
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing BarriersMedlive Neuro
Valid until July 25, 2025
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing Barriers
Medlive Neuro
Valid until July 25, 2025Course Description
“With newer therapies now available for the treatment of Rett syndrome, it is essential that the challenges of managing patients with rare diseases, such as Rett syndrome in resource-poor areas or “care deserts” be addressed.
Join a neurologist and a gastroenterologist from UAB/Children’s of Alabama Rett Syndrome Clinic, an International Rett Syndrome Foundation (IRSF)-designated center of excellence, as well as a local neurologist “champion,” who will provide an overview of newly available therapies for the treatment of Rett syndrome and explore the increased importance of neurologist-gastroenterologist collaboration for adverse event monitoring and management. These experts will also review the need for lifelong, multidisciplinary team-based care for Rett syndrome patients, and share practical strategies to improve care access for patients who may not have geographic access. Case-based discussions will explore the unique unmet care needs in community-based settings in the region and offer targeted solutions to building a multidisciplinary care team in the community and effectively leveraging new treatment options in the clinic. This activity is the second in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.”
ADDITIONAL INFO
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Rett Syndrome Foundation (IRSF).
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.
Teaming Up to Treat Rett Syndrome: The Importance of Fostering a Multidisciplinary Approach to Patient Care - Center of Excellence Session (Part 2 - Southwest)
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing BarriersMedlive Neuro
Valid until July 25, 2025
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing Barriers
Medlive Neuro
Valid until July 25, 2025Course Description
With newer therapies now available for the treatment of Rett syndrome, it is essential that the challenges of managing patients with rare diseases, such as Rett syndrome in resource-poor areas or “care deserts” be addressed.
Join a neurologist and a gastroenterologist from Children’s Health Dallas, an International Rett Syndrome Foundation (IRSF)-designated center of excellence, as well as a local neurologist “champion,” who will provide an overview of newly available therapies for the treatment of Rett syndrome and explore the increased importance of neurologist-gastroenterologist collaboration for adverse event monitoring and management. These experts will also review the need for lifelong, multidisciplinary team-based care for Rett syndrome patients, and share practical strategies to improve care access for patients who may not have geographic access. Case-based discussions will explore the unique unmet care needs in community-based settings in the region and offer targeted solutions to building a multidisciplinary care team in the community and effectively leveraging new treatment options in the clinic. This activity is the second in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.
ADDITIONAL INFO
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Rett Syndrome Foundation (IRSF).
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.
Teaming Up to Treat Rett Syndrome: The Importance of Fostering a Multidisciplinary Approach to Patient Care - Center of Excellence Session (Part 2 - West/PNW)
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing BarriersMedlive Neuro
Valid until July 25, 2025
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing Barriers
Medlive Neuro
Valid until July 25, 2025Course Description
With newer therapies now available for the treatment of Rett syndrome, it is essential that the challenges of managing patients with rare diseases, such as Rett syndrome in resource-poor areas or “care deserts” be addressed.
Join a neurologist and a gastroenterologist from Katie’s Clinic for Rett Syndrome at UCSF Benioff Children’s Hospital Oakland, an International Rett Syndrome Foundation (IRSF)-designated center of excellence, as well as a local neurologist “champion,” who will provide an overview of newly available therapies for the treatment of Rett syndrome and explore the increased importance of neurologist-gastroenterologist collaboration for adverse event monitoring and management. These experts will also review the need for lifelong, multidisciplinary team-based care for Rett syndrome patients, and share practical strategies to improve care access for patients who may not have geographic access. Case-based discussions will explore the unique unmet care needs in community-based settings in the region and offer targeted solutions to building a multidisciplinary care team in the community and effectively leveraging new treatment options in the clinic. This activity is the second in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.
ADDITIONAL INFO
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Rett Syndrome Foundation (IRSF).
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.
Sharing Real-World Experiences with New Rett Syndrome Therapies (Part 3)
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing BarriersMedlive Neuro
Valid until July 25, 2025
Elevating the Role of the Community Neurologist in Rett Syndrome Care: Understanding Novel Treatment Options, Coordinating Multidisciplinary Care, and Addressing Barriers
Medlive Neuro
Valid until July 25, 2025Course Description
Integrating newer agents for the treatment of Rett syndrome into clinical practice can be challenging, particularly in community settings. In this activity, an expert panel will convene featuring a neurologist from an International Rett Syndrome Foundation (IRSF)-designated center of excellence and a community-based multidisciplinary team, featuring a neurologist, a gastroenterologist, a physical therapist, and a speech therapist. Panelists will discuss their real-world experiences integrating novel treatments for Rett syndrome into clinical care. Experts will also share proven strategies to improve care coordination and address barriers for patients with Rett syndrome, including through the use of telehealth and ECHO programs. This activity is the third and final installment in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome. As such, the panel will also answer questions received in real-time as well as those that have been received during previous parts of the curriculum.
ADDITIONAL INFO
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Rett Syndrome Foundation (IRSF).
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.
The People Behind the Exam Room Door
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until July 30, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until July 30, 2025Course Description
Experience the perspective of a parent navigating complex healthcare choices for her daughter with Rett syndrome, including interactions with numerous interdisciplinary care providers. Read her guidance for communication and support resources that can be shared with other caregivers for patients with Rett syndrome.
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Podcast: What’s New in the Treatment of Rett Syndrome?
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until August 13, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until August 13, 2025Course Description
Listen to this podcast episode for a 2024 update on approved and investigational treatment for patients with Rett syndrome from 2 experts in pediatric neurology.
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Rett Syndrome Interactive Case Challenge: Recognizing Presentation of a Heterogeneous Disease
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome Clinical Care Options, LLC
Valid until October 24, 2025
Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome
Clinical Care Options, LLC
Valid until October 24, 2025Course Description
In this interactive case challenge, walk through the journey of a patient with Rett syndrome, from presentation of initial symptoms at a pediatric well-child visit, through diagnosis and specialty workup, to ongoing management and monitoring. Learn key features to look out for in regular pediatric care and recommendations for clinical decisions involving patients with Rett syndrome.
ADDITIONAL INFO
Provided by Clinical Care Options, LLC in partnership with the International Rett Syndrome Foundation (IRSF).
Supported by an independent educational grant from Acadia Pharmaceuticals, Inc.
Give them a voice.
Our one-of-a-kind educational resources help meet the needs of therapists, educators, and families who seek to improve communication in individuals with Rett syndrome. These resources include our exclusive Rett Syndrome Communication Guidelines and our Communication in Rett Syndrome Program, available for professional development hours.
Stay up to date on Rett.
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